Monday, December 14, 2015

Catch Up and Ringing of the Bell

I have not posted on this site for a while. There have been more important things happening in family life and our community so I will quickly try to get everyone caught up.

Last time I wrote I was almost done with radiation treatment. I finished that on October 29th. I had the radiation tech take a picture of me on the machine my last day so I could show my family what it was like. This machine would rotate around me and shoot radiation at the different spots of my body that needed it. It was very precise. It was a quick process but they had to align my body up in the same position each day using lasers to guide them. By the last week I was using burn cream each day. I wasn't in terrible pain but as you can see from a picture on an earlier post my skin had turned black and was strarting to break down. Eventually it all peeled off and looks really good now.


On my last day of radiation, I also had an appointment in Spokane to get a black spot checked out by my eye. I had noticed it towards the end of my chemo treatments and doctors wanted to make sure it wasn't Melanoma. I met with Eye Specialist, Dr. Kevin Micheals and he did a biopsy right in his office that came back benign. He thinks it was just a broken blood vessel but sent it off to be tested to be sure. Whew!

I have to write this down before I forget. In the Cancer Center, there is a big bell that hangs on the wall for patients to ring when they finish their radiation treatments. Over the course of my daily visits for 6 1/2 weeks, I had seen a couple ladies ring this bell. A group of people from around the office would stand around and cheer as each of them rang it one time. My first thought was always, "Man, they should ring that harder." I remember thinking, "When I ring that bell, I'm going to ring it 6 times. One for each of my kids."

According to the printed schedule I was given, my last day should have been October 28th but when I arrived that day, the radiation tech informed me that my last treatment wasn't until the following day. I knew I had a friend driving me to Spokane that next day already for that appointment and didn't want to ask her to drive me to Tri-Cities first before we left, so I drove myself. I kind of wanted to because I knew I would be a little emotional that day. Most people would say, "Aren't you excited? It's your last day!" But that's not at all what I felt. It was scary. Here's this monster I had been fighting all year and now you're going to tell me I'm done. Are you sure? Are you really sure it's all gone, because I would much rather keep fighting it to make sure then to have someone tell me in two years that it's back. It's much easier to fight the fight while you're in the war then to start a whole new war over again. So I drove myself.

I cried as I laid on the table that day. Lots of emotions felt. As I got off the table I thanked my techs as I did every day and they reminded me that I needed to see the doctor before I left and to make sure I rang the bell. I visited with the doctor and she told me to come back in 6 weeks. As I walked out in the foyer where the bell hung there was no one there. I thought, "I don't want to ring this by myself because I haven't done this by myself. So I thought, I'll go change and ring it when I come out; but when I came out there was still no one there. So I left without ringing the bell. I raced home and caught the ride for my next appointment.

At first when I started going to radiation treatments I thought the ringing of the bell was kind of silly. But I realized that I was sad when I didn't take my turn. That was on a Thursday. That following Sunday I was at church and we were in Relief Society, where most of the women (Sisters), who aren't teaching children somewhere else in the building, meet and instruct each other. At the beginning of class I was called unexpectedly to the front of the room. I caustiously went to the front of the room wondering what was going on and then I noticed a bell. I immediately was flooded with emotions of gratitude and started to cry. I realized that this was a tender mercy from Heavenly Father. No one was there that day in the office because I needed to ring the bell with all my sisters who have helped me so much throughout the year. One of them who had driven me earlier in the week knew that on the last day I would be ringing the bell so she texted me that day to see that I had done it. When I replied, "No," she asked me if I really hadn't and I told her why. She brought her own bell for me to ring at church and it was so much more appropriate. Oh man, in that moment, the flood gates were opened by everyone. Grateful for answered prayers through friends who are guided by the spirit.

I have continued physical therapy 2-3 times a week since my bilateral masectomy. That has really helped with my arms. I didn't realize that when they take lymph nodes out when they perform masectomy's that it would change my life so much just in day to day activities. I can never have an IV in my arm or hands again. Hence, when I went into my surgery last week I had to get it in my foot. I can't take my blood pressure on my arms or draw blood from them either. When I fly, I'm supposed to wear compression stockings on my arms. All of this to prevent lymphedema, the swelling in the arms that once you get you can never get rid of fully.

I met with Dr. Gamboa at the beginning of November for a follow-up and injection. It was bitter sweet because he was also Steve Danz's doctor. I had an appointment with him the Monday after Steve passed away. I started to cry when he walked into my room. I told him that I realized he couldn't say anything to me but that one of his patients was my friend and neighbor and he had passed away that weekend. He asked who it was and I told him. He said, "Yes," and told me what a nice couple they were. Puts everything in perspective. Grateful for the visit I got to share with him before he left this earth life and for his example to all of us to care for one another and serve always.

I enjoyed a wonderful Thanksgiving with my family. My mom knows how to decorate beautifully! What a festive table and room!!


Got to attend Caleb's last football game and sad to see the season end. Though he wasn't able to play due to his hamstring, for most of the season, they were sure fun to watch! Love good friends and these brother/sister pictures.






Enjoyed the tradition of Black Friday shopping with my sister, the day after Thanksgiving, but this year was different because I brought my older girls and Rachael's roomate Bry from Kentucky. We had lots of fun finding good deals but I couldn't last as long as I normally do so we went to a movie and lunch to end our nights festivities.

Knowing that surgery was coming on the 10th, I got everything organized and wrapped for Christmas. I reported last Thursday for my last and final surgery. Again, lots of emotions as they were prepping me for surgery. I realized while in the prepping station that I was the youngest one in the curtain. That was a sobering moment. Have I finally hit that age where I'm the oldest one in the room? I'm not even 40 yet. I turned to my anesthesiologist and said, "You've done this a few times right, because you look really young?" She smiled and said, "Yes, I'm 35." I guess that was supposed to make me feel better. Yikes! And the girl who put my IV in my foot, that was her first time doing an IV in the foot since college. Glad it went smoothly.

It was decided that I would get a full hysterectomy. I didn't realize there were different kinds. Normally they would just remove both ovaries because it's the estrogen they're trying to stop since one of my cancers feeds off estrogen. But seeing as my body likes to grow cancer and I have a higher chance of getting uterine cancer due to the chemo and radiation, I opted to take it all. Hard to be a woman and realize everything that physically makes me that way is gone. Doctors will say, but we have a surgery that can fix that; but you can't fix everything. You can't bring feeling back and nothing will be as it was before.

I've learned through this process, that it was harder emotionally before I lost parts of my body then after. The thought of loosing something before it happens can be very daunting, so I wouldn't put much thought into it until right before going into surgery or cutting my hair off etc... because it can be so sad. But as I sit here typing this, it's all gone and I'm still here. I may look a little different but I'm still me. I'm the same Daughter of God that was diagnosed in January. Doctors can't change that. Hopefully a little wiser and kinder and skinnier. There's got to be a plus to loosing things from your body right?

We can never understand totally what someone else is going through because we all have had different life experiences and trials. But it's through those experiences and trials that little by little we learn how to help each other and empathize with our friends in some small way. I will always be classified as a Cancer patient from now on but just because I've had three different cancers in my life time doesn't mean that I'll know exactly how to help a friend that gets diagnosed because our experiences and reactions will be different. But because of what I've been through I hope that I will be able to help friends in ways that I do recognize and understand to some small degree because I have done something similar and hard and survived.

At the beginning of the year I wrote how my family and kids will get to witness blessings and miracles that others only read about. I wrote why I titled this blog, "See Ya On the Other Side." We've witnessed many blessings and miracles, some of which you've seen or read about and others that are private. I am On the Other Side. I'm recovering from my last surgery. I've been warned to take it easy and lay low for several weeks and I'm heeding that warning. I want to enjoy Christmas with my family and feel that I am present and not just laying there watching the festivities take place. I had a friend ask me once what my favorite holiday is. And my reply isn't a common choice, "Christmas Eve." "Why Christmas Eve," she asked. And I said, "Because I love the anticipation and excitement that awaits for Christmas. I love knowing how excited everyone will be when they open the presents I've purchased. I love the magic and spirit that awaits and comes with Christmas. I know that that same spirit and desire for the Greatest Gift of All, our Saviors birth was present years ago. Because of his birth we will all live again. He is the Greatest Blessing. He is the greatest Miracle and I will See Him On the Other Side.

Wednesday, October 21, 2015

Just Another Day in the Price Household


Today's schedule at our house has unfortunately become a regular day in 2015 at the Price household.

- Kids getting ready for school. I put together a picture collage for Makenna's locker because she turns 16 today. Caleb hides the pictures and balloons in our car for Halli to decorate her locker; since mom can't make it to school today because of radiation and Shad's surgery. 

 

- Kids off to school, Shad and I head to town. Radiation and Surgery Day. 

 
                        This is just under my arm.

- My radiation at 8:55, hurry to Shad's arm surgery by 9:30. Yes, this is what my radiation burn looks like. My skin is starting to break down under my arm where it's the most black. Ouch!

- Shad would normally have taken Makenna to lunch so Caleb did it today. I should have asked for a picture. Caleb then ran into town for his physical therapy appointment then back to school for football practice. 

-Shad's surgery starts 2 hours late so Grandpa Montierth has to pick up Cameron and Kiersten and take them to their Primary Program practice.

- Race home after Shad's out of surgery, to make Makenna's Birthday dinner and treat. She decided she didn't want a cake but Puppy chow instead. So we inserted candles and called Rachael at college so she could sing as well.



- Kids run to mutual to have a Halloween party and mom soaks in a bathtub to help sore joints. Shad is doing really well after surgery. His nerve block is still working so that helps a lot.

Just Another Day in the Price Household.

Sunday, October 18, 2015

Radiation - 5 Weeks Down, 1-1/2 Left To Go

This is a good picture for today. 

This past week my skin has changed a lot where it's getting radiated. It's gone from looking like a sunburn rash to a dark brown leather rash look; but under my arms where the lymph nodes were, is black. It itches a little but started to have some pain yesterday. I'm really tired and haven't felt to good today. Lots of hot flashes! Just another week-and-a-half. I can Weather this Storm!


Sunday, October 11, 2015

Radiation - 4 Weeks Down

I've been chastised for not updating this more but life's been a little busy around here. Going to radiation (town) every day wears you out, but here's where I currently am.

It's been four weeks since Radiation started. I go every day Monday through Friday and have had 20 other appointments on top of that these past four weeks. To say I'm tired would be an understatement, but I can't quit now. The end is in sight and I hope and believe that 2015 will be a year of miracles. Times of learning, growing, patience, caring and loving one another.


My current schedule is radiation every morning and physical therapy twice a week with occasional blood draws and doctors appts. So far I'm just feeling really tired. I have what looks like a sun burn on my chest and back but no blistering yet, so that's good. I have friends that take me into treatments each day. It's so nice to visit with each of them since I haven't seen some of them much this year. My doctors are always surprised when I tell them the name of my friend that brought me that day. They commented how I've never said the same name twice yet. I'm not sure if they're just surprised I have that many friends or can't believe I have that much support. Love where I live and who I share it with!

I'm trying to keep up on normal household duties and kids ball games or races. Not sure how many of these events I'll be able to attend but thankful for the events I do make. I take a chemo pill each morning called Anastrozole. It makes my joints ache. They're especially sore after sitting, so when I first get up to walk I look like I'm in pain and walk like an older person. This usually lasts about 30 feet and then my body adjusts and distributes the pain so it's not so bad. Bleachers are hard for me, so if you see me struggle to get up them at ball games, that's why. I love the smaller steps! I'm supposed to take this pill or some form of it for 5 years.

At the end of this month I have an appointment in Spokane to get a spot checked out by my eye. I noticed a black spot at the corner of my left eye just before I finished chemo treatments in June. I kept forgetting to tell the doctor about it. They need to biopsy it and make sure it's not Melanoma. My hysterectomy is scheduled for Decemeber 10th. Merry Christmas to me! That was the first opening after finishing radiation that they had, but I will get to enjoy Thanksgiving with my family and Rachael will be home!!

I was talking to a friend the other day who's going through her own health battles and she commented how when she thinks she's having a bad day, she reads or remembers my blog and says to herself, "if Rebecca can do what she's doing, I can do this." That's humbling to hear and nice to know that in my limited capacity to serve, I can still help a friend in need.

My husband surprised me with these roses on Friday, October 9th. I asked what the special occasion was, not thinking about the date, and he said, "This is the day I proposed to you 20 years ago." Wow! I'm not sure how he always remembers that day but he does, and I can't even begin to tell you how much I love him for all that he's done and put up with this past year.




Unfortunately, we will always remember this day because Shad's grandfather, Anthon Price, also passed away this last Friday. I believe he was 91 years old. My children have been blessed to grow up so close to so many sets of grandparents. Because Shad and I are the oldest kids in our families and live by both sets of parents, our children have grown up with lots of Aunts, Uncles, Grandma's and Grandpa's. This will be the first funeral my kids will have experienced in their lifetime that involves a grandparent. That's amazing! Grateful this week for families and the knowledge of eternal families.




Wednesday, September 2, 2015

Stage 3 Let the Radiation Begin

So almost a month has passed since my last post. My drains were pulled on August 18th, on our way out of town for our family vacation. I would have posted about that sooner but I was on vacation. I was nervous about getting them pulled but it was much easier then expected and they were a lot longer then I thought; a good 15 inches long. Weird to see something like that getting pulled out of you while your watching it. Then they just put a band-aid over the hole and send you on your way. Surprised to get them both pulled the same day but sooo nice to have them gone!! Happy start to our vacation.

We rented a log home by North Bend and the kids had lots of fun: school shopping, fishing, riding bikes, playing games, hiking and eating good food. I even went to my other cancer appointment at Seattle Cancer Care Alliance. It was nice to be in the mountains but I was exhausted each day. Going from short movements in my house to walking a mall or mountain was fun but very tiring.






This week I started my next stage of events. I have trouble raising my arms after surgery and even though it's been four weeks, numbness and swelling prevail in areas all over my chest. The incisions are healing nicely but my surgeon recommended going to physical therapy. So I got to meet my physical therapist on Monday. I'm feeling like we're going to have a love/hate relationship. I hate the therapy but will love how it makes me feel later, so I'm told. She says I have long thoracic nerve palsy on my right side and axillary cording/axillary web syndrome on my left side. 

After she went over all my history and paperwork, she proceeded to work on me. She didn't have much time because I told her I needed to leave by 2 to make sure I was home by the time my kids got home of the bus. It was their first day of school. She warned me that when she usually works on people with these symptoms there tends to be some cracking and popping noises. I think I just tried to block that part out of my memory but it quickly came back to my remembrance after she simply placed her thumb under my left underarm and pressed deeply. I remember hearing this cracking and popping noise and instantly thinking, "that must be what she's talking about, and then feeling a wave of pain run down my arm." It literally took my breath away.  She proceeded to press her thumb down the length of my arm and reminded me to keep breathing. Wow! I then proceeded to breath as if I was in the last stages of labor while she proceeded to work on both arms. Again, Wow! She then said, "By the way, I don't think I've told you my name. When you like me,  you can call me CJ. When you don't like me, you can call me Casey. I said, "Casey...I think I might cry." She smiled and said, "let's take a little break." Next time, which is tomorrow, I'm taking Ibuprofen before I go.

Tuesday I had my radiation consultation. Visited with doctor, watched video showing radiation procedure, then had CT scan. Plan is to start radiation after I take Rachael to college next week. It will be every day for 6 1/2 weeks. So hopefully I will be done the first week of November. Side effects are mostly fatigue, skin reactions such as sunburn and blistering but skin will heal quickly within a couple weeks.

A problem that may arise after treatment for breast cancer is swelling of the arm on the side of treatment. So in my case, both arms. This is called Lymphedema and is caused by the loss or damage of underarm lymph nodes and their connecting vessels. It occurs because circulation of lymph fluid is slowed in the arm, making it harder to fight infection. Signs can show years after surgery. I was told to follow these SIMPLE rules: (Notice the emphasis on simple)

  • Avoid sunburns.
  • Have all injections, vaccinations, blood samples, and blood pressure tests done on the other arm whenever possible. (In my case, on my ankles or feet, fun!)
  • Use an electric razor with a narrow head for underarm shaving to reduce the risk of nicks or scratches.
  • Carry heavy packages or handbags on the other arm.
  • Wash cuts promptly, treat them with antibacterial medication, and cover them with a sterile dressing; check often for redness, soreness, or other signs of infection.
  • Never cut cuticles; use hand cream or lotion.
  • Wear watches or jewelry loosely, if at all, on the operated arm.
  • Wear protective gloves when gardening and when using strong detergents, etc.
  • Use a thinble when sewing.
  • Avoid harsh chemicals and abrasive compounds.
  • Use insect repellent to avoid bites and stings.
  • Avoid elastic cuffs on blouses and nightgowns.
IS THIS ALL FOR REAL! There's a reason they don't tell you everything in the beginning. They will monitor me carefully and if I show signs of Lymphedema starting I will need massage and wrapping therapy. Maybe I should just start routine massages just to make sure. :)

My hair is slowly coming back though many people have replied how fast it's coming in. So glad to have eyelashes and eyebrows again. 


Just heard news this last week that my neighbor, Steve Danz, has been diagnosed with pancreatic cancer. There is no cure for this. They've asked that everyone pray that their insurance will accept the clinical chemo that will prolong his life. Please add him to your prayer list if you haven't already. It's hard to see someone I know going through similar experiences that I've just gone through but Steve is very positive and that will help him immensely through his fight. 


Love you all and thank you for your continued prayers and support to me and my family!!

Wednesday, August 5, 2015

Post OP Update

Met with surgeon today to check progress of surgery, possibly pull drains and get pathology report from surgery. Pathology report showed that after chemo my tumors had been significantly reduced in my lymph nodes and breasts. The left side has been diagnosed as Stage 1 with 1 lymph node out of 13 removed showing signs of having had cancer. (I can't remember how that's worded because at the moment I can't find my paperwork, but that's the jist of what he said.) The right side has been diagnosed as Stage 2B with 1 lymph node out of 11 removed showing signs of having had cancer. So good news!

Drains were not able to be pulled today because there's still too much fluid being drained. It looks like I have a small hematoma on the left side that's taking longer to drain. I will go back to the doctor Friday morning to see if by chance the right side can get pulled. The doctor will be out of town next week, so I won't be able to pull the other side until after he gets back. So another possible week-and-a-half with drains. Sad :( but I had a good attitude about it. He thought everything looks really good though.

He said I could try to do some stretching exercises. Not anything to extensive but it will help with physical therapy in a couple weeks. He explained that as things heal, the skin will get pretty tight and my back will start to bow forward and look rounded; hence the need for physical therapy.

I am going to try and do more things this week. I still can't lift more then 5 pounds but I'm sure I can find some things to do to be helpful. I take long walks each night that feel so good. I love the smell of the orchard and freshly cut hay fields. My hair is starting to grow again and so are my eyelashes. Yay! Extrememly grateful for the many prayers in my behalf and how good I'm feeling thus far.



Thursday, July 30, 2015

Rebecca returns Home

  Rebecca is now home and is adjusting very well since the surgery on Monday.  She spends most of her day resting to allow her body to heal itself.  She suprisingly has been able to take Ibuprophen alone to control her pain.  Her spirits are really good and her smile is back.

Shad

Tuesday, July 28, 2015

Post Surgery Update

Yesterday Rebecca had her double mastectomy surgery.  She started surgery prep at 12:45 and was delivered into her recovery room at 6:00pm.  She was able to rest most of the night but did struggle with nausea.  She did discover that she loves Dilaudid (pain med), it worked very well for her.  :)  She met with Dr. Droesch this morning and he only had good things to say about the surgery and her recent 12 hours of recovery.  Several Lymph nodes were removed during surgery to be reviewed by a couple of pathologists and those results will be available early next week.  She is in good spirits and is doing very well.  The plan is for her to go home tomorrow morning.  I'm impressed at how strong and of course beautiful she is as she goes through these challenges.  It is incredible to see all the little miracles occuring all the time.  She has the most amazing doctor and the nurse she had last night was heaven sent, because of the wonderful care she gave my wife (she too had the same surgery 18 months ago and so could relate to my wifes discomforts).  We have felt your prayers and I know our Father in Heaven has heard them as well because of all the wonderful things that have happened in the past 24 hours. Thank you and I will be sure to send one more update in the next day or two.

Shad


Monday, July 27, 2015

Surgery Schedule Today

Todays surgery check-in time is 12:15. I was told to plan on 8 hours from the time they wheel me away to when I wake up. I'm guessing it'll be shorter then that.

People ask how I'm doing and I say good, because I really am. I don't sit and dwell on what's happening because if I do I can get sad really fast. I figure there's no point in sadness before surgery; let's save that for after because I'm sure I'm going to have a hard time tonight. Because of that, I'm asking for NO Visitors tonight. I'd like it to just be Shad and I.

I'm asking with humble heart for your prayers in my behalf this week. Strength to endure and healing will be in my prayers as well as all who will care for me and my family. I think I'm most worried about the mobility of my arms. How quickly that will come back. I already have problems with the numbness and tingling now, what will the surgery add to that?

In my mind I was thinking I'd be down for a week and come back strong but after some studying and reading, I realize it may be much longer then that. I will be a fighter in this, so we'll see how long it takes.

It's going to take many people to help my family get through this. To all of you reading this, praying for us and helping us in so many ways, please know how much I Love You! I could not do this today without all of you. My heart is very full going into surgery.

I will not be able to type on this for a while. I will try to teach Shad today how to put updates on here so it won't be weeks without you knowing what's going on. See Ya On the Other Side of Surgery!! :)

Sunday, July 26, 2015

Shout Out to Uncle Mark

I need to put a Shout to my Uncle Mark. Apparently, he drove all the way to Washington just to see me before my surgery. Not really, but I know he would have because I'm his Favorite Niece!!

Wednesday, July 22, 2015

Why Didn't the Angel Just Take Him Out?

DISCLAIMER: I Did Not Write This but I love what she said and how she said it. Attached below is the link to this ladies blog. (I deleted the picture of her daughter, Jane.)


http://lessonsofamother.blogspot.com/2015/07/why-didnt-angel-just-take-him-out.html

Why Didn't the Angel Just Take Him Out?


I read Jane the story of Daniel in the lions' den tonight. When we got to the part where the angel appears and shuts the lions' mouths she asked, "Why didn't the angel just take him out?"

Don't we all ask God that question sometimes?
"Why aren't you taking me out of this situation?"
"Why aren't you taking away this illness?"
"Why aren't you fixing this problem or this relationship?"
"Why aren't you answering my questions or taking away my doubts?"
... I KNOW YOU CAN! Isn't that faith? And isn't faith supposed to produce results?

So Jane presents a valid question. If Daniel was a man of great faith, and faith produces miracles, why didn't the angel just take him out of the lions' den? He could have.

Because if he did, Daniel would have missed the whole experience of being IN the lions' den but not being eaten alive.

He would have known God's power to deliver him FROM difficulty, but he wouldn't have experienced God's power to deliver him IN difficulty. That's a whole different level of power and requires a whole different level of faith.


There was not just a single lion in that den. There was a whole group of lions ready to rip Daniel apart, but his faith was sufficient and God's power was sufficient that none of them got a single bite. 

At times in our lives we feel like we've been thrown to lions, lots of them, all ready to eat us. But instead of spending our energy wondering why God isn't taking us out, we can step back and realize, "I'm not being eaten alive in here... even though I should be. Somehow I'm going to come out of this alive." Then look around and see God's angels who are holding back your lions...

...At times I've begged to just be taken out of this. But look at what I would have missed! I would have missed the angels, on this side of the veil and the other, who have literally held back the lions' jaws. I would missed a deeper relationship with God and I would have missed the person I've become. 

So take another look at your lions, and be grateful for them. When you experience deliverance IN the lions' den, suddenly your faith and trust rise to a whole new level, one that never would have been possible had you just been delivered FROM it. 

Saturday, July 18, 2015

Quick Update of Events

I realize I haven't posted in a long time and many things have happened, but typing right now is hard for me to do.  One of the symptoms of my last chemo is tingling and numbing of my hands and feet which makes it difficult to do things that require little movements with my fingers and toes. I mess up typing a lot because I can't feel the keys and where I'm at on the keyboard. Hopefully that will come back with time but the doctor said he can't promise that it'll all come back. For this reason I will just list things that have happened or will happen in the next couple months.

June 22 - Last chemo treatment. Exciting but nervous at the same time because I could still feel the tumors and didn't know what that meant for later. I took Rachael, my oldest child with me, and she ran errands for me as I went through the first part of my treatment. My sister surprised us with Costa Vida for lunch and the nurses sang to me and gave me a bottle of Sparkling Cider to celebrate; and No, it wasn't "Sheffield Cider." We need to get them a bottle so they can taste the difference. :)





June 24 - Received Genetic Testing Results. I forgot to mention anything about that. At the beginning of all this, I had some Genetic Testing done to see if this ran in my genes and could possibly pass it on to my kids and/or siblings. They ran a huge panel and it came back negative. Great News!! My body just likes to grow Cancer.

July 9- Pet scan. I was told I couldn't do any activities for 48 hours before the scan. Just sit. If you know me, that's hard to do but I did find a project to keep me sitting. I typed up recipes for Rachael's cookbook for college.

July 13 - Met with Dr. Gamboa for Pet scan results. Tumors have shrunk significantly in size and cancer hasn't spread. Continue plan to have surgery and radiation. More Great News!! Start Leuprolide injection, which blocks the release of estrogen in my body. I receive this every 3 months until my ovaries are removed. Start taking Anastrozole every day for the next five years. Both of these are hormone therapies. Anastrozolel fights cancer. These both have many side effects that I will have to watch for. Some hard to tell since they mimic the chemo side effects I already have, like hair loss, bone pain and weight gain. Lovely :(

July 17 - Met with Dr. Droesch to schedule Double Mastectomy. Monday, July 27th is the big day. I wanted to do it next week but he has to leave town for an adoption and he doesn't want to leave me under another doctors care right after surgery. I was told from start to finish it would take about 8 hours. I should expect to stay in the hospital for 1-2 nights, he's guessing two because it's a double mastectomy and wants me to be able to manage my drains well before I leave. Drains usually stay in 5-10 days. After healing, I will need physical therapy for my arms.Radiation can start 4 weeks after surgery.

I got ambitious and tried to get some projects done before surgery and school starting. I fell painting the kids rooms and hurt my arm pinning it between the slats on the kids bunk beds. People ask, why didn't you call? Because it started out as one of those little projects just switching the boys and girls room. We emptied the rooms and I realized it would be much nicer if I just hurried and painted the walls and ceilings, not taking into account I'm not really stable on my feet right now. Long story short, the rooms are done and my arm is not broken, just really sore wrist.

My endurance is coming back slowly but I've been told that radiation will wipe me out. We'll see. :) I would rather be tired from pushing myself then sitting all day. I know next week will be hard emotionally and physically but grateful to be this far. One week to get ready for Stage 2. Bring it on. The closer it gets to New Years the better.


Friday, June 26, 2015

Claritin and a Transfer Button

So I've got to write this down before I forget and while it's still funny right now. It wasn't funny a few weeks ago but now I can laugh at it. I'm having a hard time sleeping due to the heat and my night sweats and hot flashes aren't helping at all, so I thought I'd try to get caught up on my blog.

I've got to put this blog entry in so I will remember some of the commical sides to this fun adventure this year. For my last four chemo rounds, I've taken a different chemo drug called Paclitaxel. Like any drug taken, it has many side effects. Some I've written about and some left private for modesty reasons.

The night before I go into these treatments I'm to take 5 Dexamethasone. I was told it's a steroid to help with some of the side effects that can take place when they give me this chemo like: shortness of breath, my chest feeling like it's only got 25% of the capacity to breath that it normally does, bad charly horses in my legs, etc. And that's when they warned me that they'd have several nurses watching me the first 15 minutes in case I had a reaction and so forth. My first thought was, "Wow 5 pills! You couldn't condense those into one? And three nurses? What's going to happen that you need 3 nurses watching me like a hawk for 15 minutes?" And these are the things they tell you about, but I've learned over the past several months there's many things they don't tell you about. Hence, why we need what I call the "Transfer Button."

I love my doctor and nurses! I don't want anyone to take from this differently, but sometimes what you read and study in a book can be different then what's happening in front of you. Everyone knows what I'm talking about. You don't have to be sick with cancer to have the age old problem of trying to explain to the doctor the symptoms you're feeling inside your body. It's like taking the car to the mechanic and trying to mimic the sound the car is making and he should just know what's wrong when you make that sound right?

Well, I was given the short side effect list above before treatment, but no one warned me of the bone pain I quickly experienced after I went home. I was told that if I did start to experience leg pain to take a Claritin. A Claritin? Ok, I'm not an expert on medication but I've seen enough commercials to know that Claritin is an allergy drug. It helps with sneezing, runny nose, itchy, watery eyes, itchy throat or nose, that kind of thing. No where on that list does it include helps with bone pain. He said to take one pill a day for three days when I receive my injection shot the day after chemo. He said that they've had great results with patients who've done this. Great! So we purchase Claritin on the way home, because who am I to question the doctor on something he says works for others. Seemed like an easy solution to something that could cause a lot of muscle pain from what was being described to me. Again, how Claritin was to help with that, I didn't understand but I followed the doctors orders.

24 hours later I received my injection and about 3-4 hours later my flu like symptoms had set in but so did the bone pain. It started in my skull and moved down my neck and across my shoulders. It then shot pains down my legs or sometimes it feels like fireworks of pain in my legs. This lasted 3-4 days like he said but it wasn't muscle pain it was bone pain. So when I saw him again a week later for my follow-up appointment, I explained to him what I had experienced, that it's in my bones not my muscles. He then asked me if I had taken the Claritin that they told me to take. Time for my "Transfer Button." Sometimes I feel like we need a transfer button, so the doctor can feel what we're feeling. I just needed that button that day to push and say, "Here! Feel this! Does this feel like something you'd take a Claritin for?" So I responded to his question, "Yes, I took it for 3 days just like you said." He then asked, "Well, did you notice a difference?" I replied, "I wouldn't know. I took the medicine just like he instructed. So I'm not sure what it's like to not have the medicine inside me when I have these symptoms, but I'm trying to tell you now that it's still pretty bad even when I take the medicine. Do you have something stronger then a Claritin I could take? Like a pain pill for example. I have several of those on my window sill? Could I take one of those? How about Benadryl, that might put me to sleep for a few hours of relief. It's an allergy medicine."

At the time, this was a serious conversation, but today I can laugh at it. I have received some relief the next few chemo rounds by him suggesting I keep taking more of my steroid pills those first three days to help with the pain and it has. But I'm still waiting for someone to invent the "Transfer Button," and I will never look at Claritin the same way again.


Sunday, June 21, 2015

Cancer, Didn't You Learn the First Time

I’ve had a very busy week. It’s been good but very exhausting. Each day has pretty much been a “normal mom” day this week and today I’m feeling the effects of all my efforts. So, aside from making our Father’s day meal, which most of it I prepared yesterday, I’m laying low. I did try to surprise my dad and husband by attending Sacrament meeting today though. J

As I lay here on my bed, I started to think about tomorrow and what it means, “Last chemo treatment.” People say, “aren’t you excited for your last treatment?” Excited probably isn’t the word I’d use. There are lots of emotions and thoughts that come with that question. It’s the end to one chapter of this year, a long one, but there’s so much still to come. As I sit here, I’ve gone back and read some of my first blog postings. I made myself cry, for so many reasons! I can’t believe it’s been 5 months since this roller coaster started. I feel… not sure how to put into words. I just breathe and am grateful. I’m sure my post tomorrow will be an emotional one.


Rachael told me the other day she thought she found a 5k race in the Tri-Cities in August that she thinks the kids should run in. She wants three of them to wear blue shirts that say, ”Cancer, didn’t you learn the first time…” and three of them to wear pink shirts that say, “you’ve messed with the wrong mom!” That put a smile on my face.

Tuesday, June 9, 2015

Shout Out to Teachers, Neighbors, Friends and Family

Since this whole process started at the beginning of the year, many acts of service have been conducted on behalf of my family. Words can not express the depth of gratitude I have for the staff in our schools, neighbors, friends and family. Not only locally but around the world. Many people have asked what they can do to help. In the beginning, it was all about prayer and still is. I have seen the Lord's hand in our lives many times over the last several months. Miracles of peace, strength and comfort as well as health. My family really hasn't been sick except for a little bout we had with fevers and flu symptoms but I never got it. Blessing!

As people have asked what they can do to help, I just remind them that if there's not something right now, don't worry. I promise I will call if I need help. This is a full years process and I will need help in different spurts throughout the year. We've had several thoughtful secret deliveries to our house, some with unsigned notes, others just delivered. I have no idea who they're from but know that our family has been blessed and yours will be too as service always brings blessings.

As the school year comes to a close, I want to thank all my kids teachers and staff. They have not only shown love and support in the classroom but in our home as well. Mesa Elementary staff has brought treats into our home each Monday night, for our family night, since this whole process started. It's been cute to see the kids get excited to see what teacher brought treats and ask, "what did they make us?" It's funny for my younger kids to realize teachers don't live at school. They have lives outside of the building as well. I think we should do a cookbook fundraiser for the school next year. We have some good cooks and I'd even be willing to do the typing as I will have plenty of sitting or bed rest days. Just an idea! We've also received some delicious freezer meals from the high school. I know your lives are extrememly busy and I truly appreciate the time you've taken from your schedules to help our family.

I've received many notes and texts of encouragement from neighbors, friends and family. I have felt much love and concern from all of you and know that your kind words help me keep going. I have good days and bad days. I think I've been pretty honest in my writings. If sometimes I seem to be vague in my writing, like when I'm describing current symptoms, it's just because some things are too personal to write for everyone to read, since this is a public blog. But, like I've written before, attitude is everything; but every once in a while, when things get real tough, I need a little cry session. Just for a few minutes. Walks are good too, but do wear me out especially with the hotter days.

I appreciate all the rides that have been provided for my children these past several months. Busy time of life at our house, with six kids at home, all going different directions. I rarely have to call and ask. People have been so good to call and offer for many of their activities. Even just to have kids come and play after school or on Saturday for a few hours. I know my kids have loved it! Getting away from the house for a few hours is always nice.

To my family and friends that live far away, I love you for keeping in touch even from a distance. Suprise phone calls, texts, emails and even packages have arrived over the past several months and always make my day. The thoughtful ideas of what can be done to help our family is incredible. As we all go through our different experiences in life, it helps prepare us to know how to better help each other as diffferent circumstances arise and our family has been the beneficiary of many of these.

In two weeks I have my last chemo treatment. Excited to be at the end of the first phase. I have been blessed to not have been admitted to the hospital or have problems with my mediport getting infected. Blessings of many prayers in my behalf. People have asked, "what's next?" After my last round of chemo, they wait four weeks for my body to heal before we do the double mastectomy. I'm guessing middle to end of July. Then I need to fully heal from that before they start radiation. Again, usually plan four to six weeks to heal. Guessing they'll start radiation at the end of August beginning of September. I have to do radiation every day for 6 1/2 weeks after that. I will try to take a couple days off to take Rachael to college then resume radiation when I come back. The doctor thought that might be possible. Then after that, end of October or November will be the hysterectomy. Wow! 2015 will be a loaded year and one I'll always remember.

To all of you I say, "I love you!" Thank you for all you've done and are doing for my family. I pray my family always remembers the love that's been shown to us and carries it forward, when, like my title states, we See Ya On the Other Side.






7th Round of Chemo Down

Yesterday was my 7th round of Chemo. Gone for 8 hours. Makes for a tiring day. Just one more in two weeks! Today they put what they called a patch on my arm for my injection this week. I'm not sure why they called it a patch and compared it to a nicoderm patch. I've never worn one of those but this looks more like a pump. It's bulky and has a needle that's injected into my arm and will dispense my injection meds in 27 hours for 45 minutes then I can take it off. They wanted to put it on my stomach but I asked if it could go on my arm instead and they said yes. Interesting huh?


Grateful for this last couple weeks and my kids activities that I've been able to attend. Dallin was supposed to have 6th Grade Promotion today and Kiersten had a field trip but we decided to have our our own field trip and promotion since we wouldn't be able to attend today. Here are some pics from the last couple weeks.

Just finished Senior Leap Presentations!

Last CHS Choir Concert 

Bleaching hair for State 4x400 Team


  State Track 


Caleb, Dallas, Steven, Lane                                                                                                         

   Kiersten & Dallin's Ace Awards



Baccalaureate


   Heather, Jessica, Rachael, Makenna                                        Morgan, Cassi, Jenna, Rachael



Graduation!

      Rachael and Rebecca                                                                     Waiting to receive diploma          


It's official!



Family







ASB Officers