Monday, December 14, 2015

Catch Up and Ringing of the Bell

I have not posted on this site for a while. There have been more important things happening in family life and our community so I will quickly try to get everyone caught up.

Last time I wrote I was almost done with radiation treatment. I finished that on October 29th. I had the radiation tech take a picture of me on the machine my last day so I could show my family what it was like. This machine would rotate around me and shoot radiation at the different spots of my body that needed it. It was very precise. It was a quick process but they had to align my body up in the same position each day using lasers to guide them. By the last week I was using burn cream each day. I wasn't in terrible pain but as you can see from a picture on an earlier post my skin had turned black and was strarting to break down. Eventually it all peeled off and looks really good now.


On my last day of radiation, I also had an appointment in Spokane to get a black spot checked out by my eye. I had noticed it towards the end of my chemo treatments and doctors wanted to make sure it wasn't Melanoma. I met with Eye Specialist, Dr. Kevin Micheals and he did a biopsy right in his office that came back benign. He thinks it was just a broken blood vessel but sent it off to be tested to be sure. Whew!

I have to write this down before I forget. In the Cancer Center, there is a big bell that hangs on the wall for patients to ring when they finish their radiation treatments. Over the course of my daily visits for 6 1/2 weeks, I had seen a couple ladies ring this bell. A group of people from around the office would stand around and cheer as each of them rang it one time. My first thought was always, "Man, they should ring that harder." I remember thinking, "When I ring that bell, I'm going to ring it 6 times. One for each of my kids."

According to the printed schedule I was given, my last day should have been October 28th but when I arrived that day, the radiation tech informed me that my last treatment wasn't until the following day. I knew I had a friend driving me to Spokane that next day already for that appointment and didn't want to ask her to drive me to Tri-Cities first before we left, so I drove myself. I kind of wanted to because I knew I would be a little emotional that day. Most people would say, "Aren't you excited? It's your last day!" But that's not at all what I felt. It was scary. Here's this monster I had been fighting all year and now you're going to tell me I'm done. Are you sure? Are you really sure it's all gone, because I would much rather keep fighting it to make sure then to have someone tell me in two years that it's back. It's much easier to fight the fight while you're in the war then to start a whole new war over again. So I drove myself.

I cried as I laid on the table that day. Lots of emotions felt. As I got off the table I thanked my techs as I did every day and they reminded me that I needed to see the doctor before I left and to make sure I rang the bell. I visited with the doctor and she told me to come back in 6 weeks. As I walked out in the foyer where the bell hung there was no one there. I thought, "I don't want to ring this by myself because I haven't done this by myself. So I thought, I'll go change and ring it when I come out; but when I came out there was still no one there. So I left without ringing the bell. I raced home and caught the ride for my next appointment.

At first when I started going to radiation treatments I thought the ringing of the bell was kind of silly. But I realized that I was sad when I didn't take my turn. That was on a Thursday. That following Sunday I was at church and we were in Relief Society, where most of the women (Sisters), who aren't teaching children somewhere else in the building, meet and instruct each other. At the beginning of class I was called unexpectedly to the front of the room. I caustiously went to the front of the room wondering what was going on and then I noticed a bell. I immediately was flooded with emotions of gratitude and started to cry. I realized that this was a tender mercy from Heavenly Father. No one was there that day in the office because I needed to ring the bell with all my sisters who have helped me so much throughout the year. One of them who had driven me earlier in the week knew that on the last day I would be ringing the bell so she texted me that day to see that I had done it. When I replied, "No," she asked me if I really hadn't and I told her why. She brought her own bell for me to ring at church and it was so much more appropriate. Oh man, in that moment, the flood gates were opened by everyone. Grateful for answered prayers through friends who are guided by the spirit.

I have continued physical therapy 2-3 times a week since my bilateral masectomy. That has really helped with my arms. I didn't realize that when they take lymph nodes out when they perform masectomy's that it would change my life so much just in day to day activities. I can never have an IV in my arm or hands again. Hence, when I went into my surgery last week I had to get it in my foot. I can't take my blood pressure on my arms or draw blood from them either. When I fly, I'm supposed to wear compression stockings on my arms. All of this to prevent lymphedema, the swelling in the arms that once you get you can never get rid of fully.

I met with Dr. Gamboa at the beginning of November for a follow-up and injection. It was bitter sweet because he was also Steve Danz's doctor. I had an appointment with him the Monday after Steve passed away. I started to cry when he walked into my room. I told him that I realized he couldn't say anything to me but that one of his patients was my friend and neighbor and he had passed away that weekend. He asked who it was and I told him. He said, "Yes," and told me what a nice couple they were. Puts everything in perspective. Grateful for the visit I got to share with him before he left this earth life and for his example to all of us to care for one another and serve always.

I enjoyed a wonderful Thanksgiving with my family. My mom knows how to decorate beautifully! What a festive table and room!!


Got to attend Caleb's last football game and sad to see the season end. Though he wasn't able to play due to his hamstring, for most of the season, they were sure fun to watch! Love good friends and these brother/sister pictures.






Enjoyed the tradition of Black Friday shopping with my sister, the day after Thanksgiving, but this year was different because I brought my older girls and Rachael's roomate Bry from Kentucky. We had lots of fun finding good deals but I couldn't last as long as I normally do so we went to a movie and lunch to end our nights festivities.

Knowing that surgery was coming on the 10th, I got everything organized and wrapped for Christmas. I reported last Thursday for my last and final surgery. Again, lots of emotions as they were prepping me for surgery. I realized while in the prepping station that I was the youngest one in the curtain. That was a sobering moment. Have I finally hit that age where I'm the oldest one in the room? I'm not even 40 yet. I turned to my anesthesiologist and said, "You've done this a few times right, because you look really young?" She smiled and said, "Yes, I'm 35." I guess that was supposed to make me feel better. Yikes! And the girl who put my IV in my foot, that was her first time doing an IV in the foot since college. Glad it went smoothly.

It was decided that I would get a full hysterectomy. I didn't realize there were different kinds. Normally they would just remove both ovaries because it's the estrogen they're trying to stop since one of my cancers feeds off estrogen. But seeing as my body likes to grow cancer and I have a higher chance of getting uterine cancer due to the chemo and radiation, I opted to take it all. Hard to be a woman and realize everything that physically makes me that way is gone. Doctors will say, but we have a surgery that can fix that; but you can't fix everything. You can't bring feeling back and nothing will be as it was before.

I've learned through this process, that it was harder emotionally before I lost parts of my body then after. The thought of loosing something before it happens can be very daunting, so I wouldn't put much thought into it until right before going into surgery or cutting my hair off etc... because it can be so sad. But as I sit here typing this, it's all gone and I'm still here. I may look a little different but I'm still me. I'm the same Daughter of God that was diagnosed in January. Doctors can't change that. Hopefully a little wiser and kinder and skinnier. There's got to be a plus to loosing things from your body right?

We can never understand totally what someone else is going through because we all have had different life experiences and trials. But it's through those experiences and trials that little by little we learn how to help each other and empathize with our friends in some small way. I will always be classified as a Cancer patient from now on but just because I've had three different cancers in my life time doesn't mean that I'll know exactly how to help a friend that gets diagnosed because our experiences and reactions will be different. But because of what I've been through I hope that I will be able to help friends in ways that I do recognize and understand to some small degree because I have done something similar and hard and survived.

At the beginning of the year I wrote how my family and kids will get to witness blessings and miracles that others only read about. I wrote why I titled this blog, "See Ya On the Other Side." We've witnessed many blessings and miracles, some of which you've seen or read about and others that are private. I am On the Other Side. I'm recovering from my last surgery. I've been warned to take it easy and lay low for several weeks and I'm heeding that warning. I want to enjoy Christmas with my family and feel that I am present and not just laying there watching the festivities take place. I had a friend ask me once what my favorite holiday is. And my reply isn't a common choice, "Christmas Eve." "Why Christmas Eve," she asked. And I said, "Because I love the anticipation and excitement that awaits for Christmas. I love knowing how excited everyone will be when they open the presents I've purchased. I love the magic and spirit that awaits and comes with Christmas. I know that that same spirit and desire for the Greatest Gift of All, our Saviors birth was present years ago. Because of his birth we will all live again. He is the Greatest Blessing. He is the greatest Miracle and I will See Him On the Other Side.

Wednesday, October 21, 2015

Just Another Day in the Price Household


Today's schedule at our house has unfortunately become a regular day in 2015 at the Price household.

- Kids getting ready for school. I put together a picture collage for Makenna's locker because she turns 16 today. Caleb hides the pictures and balloons in our car for Halli to decorate her locker; since mom can't make it to school today because of radiation and Shad's surgery. 

 

- Kids off to school, Shad and I head to town. Radiation and Surgery Day. 

 
                        This is just under my arm.

- My radiation at 8:55, hurry to Shad's arm surgery by 9:30. Yes, this is what my radiation burn looks like. My skin is starting to break down under my arm where it's the most black. Ouch!

- Shad would normally have taken Makenna to lunch so Caleb did it today. I should have asked for a picture. Caleb then ran into town for his physical therapy appointment then back to school for football practice. 

-Shad's surgery starts 2 hours late so Grandpa Montierth has to pick up Cameron and Kiersten and take them to their Primary Program practice.

- Race home after Shad's out of surgery, to make Makenna's Birthday dinner and treat. She decided she didn't want a cake but Puppy chow instead. So we inserted candles and called Rachael at college so she could sing as well.



- Kids run to mutual to have a Halloween party and mom soaks in a bathtub to help sore joints. Shad is doing really well after surgery. His nerve block is still working so that helps a lot.

Just Another Day in the Price Household.

Sunday, October 18, 2015

Radiation - 5 Weeks Down, 1-1/2 Left To Go

This is a good picture for today. 

This past week my skin has changed a lot where it's getting radiated. It's gone from looking like a sunburn rash to a dark brown leather rash look; but under my arms where the lymph nodes were, is black. It itches a little but started to have some pain yesterday. I'm really tired and haven't felt to good today. Lots of hot flashes! Just another week-and-a-half. I can Weather this Storm!


Sunday, October 11, 2015

Radiation - 4 Weeks Down

I've been chastised for not updating this more but life's been a little busy around here. Going to radiation (town) every day wears you out, but here's where I currently am.

It's been four weeks since Radiation started. I go every day Monday through Friday and have had 20 other appointments on top of that these past four weeks. To say I'm tired would be an understatement, but I can't quit now. The end is in sight and I hope and believe that 2015 will be a year of miracles. Times of learning, growing, patience, caring and loving one another.


My current schedule is radiation every morning and physical therapy twice a week with occasional blood draws and doctors appts. So far I'm just feeling really tired. I have what looks like a sun burn on my chest and back but no blistering yet, so that's good. I have friends that take me into treatments each day. It's so nice to visit with each of them since I haven't seen some of them much this year. My doctors are always surprised when I tell them the name of my friend that brought me that day. They commented how I've never said the same name twice yet. I'm not sure if they're just surprised I have that many friends or can't believe I have that much support. Love where I live and who I share it with!

I'm trying to keep up on normal household duties and kids ball games or races. Not sure how many of these events I'll be able to attend but thankful for the events I do make. I take a chemo pill each morning called Anastrozole. It makes my joints ache. They're especially sore after sitting, so when I first get up to walk I look like I'm in pain and walk like an older person. This usually lasts about 30 feet and then my body adjusts and distributes the pain so it's not so bad. Bleachers are hard for me, so if you see me struggle to get up them at ball games, that's why. I love the smaller steps! I'm supposed to take this pill or some form of it for 5 years.

At the end of this month I have an appointment in Spokane to get a spot checked out by my eye. I noticed a black spot at the corner of my left eye just before I finished chemo treatments in June. I kept forgetting to tell the doctor about it. They need to biopsy it and make sure it's not Melanoma. My hysterectomy is scheduled for Decemeber 10th. Merry Christmas to me! That was the first opening after finishing radiation that they had, but I will get to enjoy Thanksgiving with my family and Rachael will be home!!

I was talking to a friend the other day who's going through her own health battles and she commented how when she thinks she's having a bad day, she reads or remembers my blog and says to herself, "if Rebecca can do what she's doing, I can do this." That's humbling to hear and nice to know that in my limited capacity to serve, I can still help a friend in need.

My husband surprised me with these roses on Friday, October 9th. I asked what the special occasion was, not thinking about the date, and he said, "This is the day I proposed to you 20 years ago." Wow! I'm not sure how he always remembers that day but he does, and I can't even begin to tell you how much I love him for all that he's done and put up with this past year.




Unfortunately, we will always remember this day because Shad's grandfather, Anthon Price, also passed away this last Friday. I believe he was 91 years old. My children have been blessed to grow up so close to so many sets of grandparents. Because Shad and I are the oldest kids in our families and live by both sets of parents, our children have grown up with lots of Aunts, Uncles, Grandma's and Grandpa's. This will be the first funeral my kids will have experienced in their lifetime that involves a grandparent. That's amazing! Grateful this week for families and the knowledge of eternal families.




Wednesday, September 2, 2015

Stage 3 Let the Radiation Begin

So almost a month has passed since my last post. My drains were pulled on August 18th, on our way out of town for our family vacation. I would have posted about that sooner but I was on vacation. I was nervous about getting them pulled but it was much easier then expected and they were a lot longer then I thought; a good 15 inches long. Weird to see something like that getting pulled out of you while your watching it. Then they just put a band-aid over the hole and send you on your way. Surprised to get them both pulled the same day but sooo nice to have them gone!! Happy start to our vacation.

We rented a log home by North Bend and the kids had lots of fun: school shopping, fishing, riding bikes, playing games, hiking and eating good food. I even went to my other cancer appointment at Seattle Cancer Care Alliance. It was nice to be in the mountains but I was exhausted each day. Going from short movements in my house to walking a mall or mountain was fun but very tiring.






This week I started my next stage of events. I have trouble raising my arms after surgery and even though it's been four weeks, numbness and swelling prevail in areas all over my chest. The incisions are healing nicely but my surgeon recommended going to physical therapy. So I got to meet my physical therapist on Monday. I'm feeling like we're going to have a love/hate relationship. I hate the therapy but will love how it makes me feel later, so I'm told. She says I have long thoracic nerve palsy on my right side and axillary cording/axillary web syndrome on my left side. 

After she went over all my history and paperwork, she proceeded to work on me. She didn't have much time because I told her I needed to leave by 2 to make sure I was home by the time my kids got home of the bus. It was their first day of school. She warned me that when she usually works on people with these symptoms there tends to be some cracking and popping noises. I think I just tried to block that part out of my memory but it quickly came back to my remembrance after she simply placed her thumb under my left underarm and pressed deeply. I remember hearing this cracking and popping noise and instantly thinking, "that must be what she's talking about, and then feeling a wave of pain run down my arm." It literally took my breath away.  She proceeded to press her thumb down the length of my arm and reminded me to keep breathing. Wow! I then proceeded to breath as if I was in the last stages of labor while she proceeded to work on both arms. Again, Wow! She then said, "By the way, I don't think I've told you my name. When you like me,  you can call me CJ. When you don't like me, you can call me Casey. I said, "Casey...I think I might cry." She smiled and said, "let's take a little break." Next time, which is tomorrow, I'm taking Ibuprofen before I go.

Tuesday I had my radiation consultation. Visited with doctor, watched video showing radiation procedure, then had CT scan. Plan is to start radiation after I take Rachael to college next week. It will be every day for 6 1/2 weeks. So hopefully I will be done the first week of November. Side effects are mostly fatigue, skin reactions such as sunburn and blistering but skin will heal quickly within a couple weeks.

A problem that may arise after treatment for breast cancer is swelling of the arm on the side of treatment. So in my case, both arms. This is called Lymphedema and is caused by the loss or damage of underarm lymph nodes and their connecting vessels. It occurs because circulation of lymph fluid is slowed in the arm, making it harder to fight infection. Signs can show years after surgery. I was told to follow these SIMPLE rules: (Notice the emphasis on simple)

  • Avoid sunburns.
  • Have all injections, vaccinations, blood samples, and blood pressure tests done on the other arm whenever possible. (In my case, on my ankles or feet, fun!)
  • Use an electric razor with a narrow head for underarm shaving to reduce the risk of nicks or scratches.
  • Carry heavy packages or handbags on the other arm.
  • Wash cuts promptly, treat them with antibacterial medication, and cover them with a sterile dressing; check often for redness, soreness, or other signs of infection.
  • Never cut cuticles; use hand cream or lotion.
  • Wear watches or jewelry loosely, if at all, on the operated arm.
  • Wear protective gloves when gardening and when using strong detergents, etc.
  • Use a thinble when sewing.
  • Avoid harsh chemicals and abrasive compounds.
  • Use insect repellent to avoid bites and stings.
  • Avoid elastic cuffs on blouses and nightgowns.
IS THIS ALL FOR REAL! There's a reason they don't tell you everything in the beginning. They will monitor me carefully and if I show signs of Lymphedema starting I will need massage and wrapping therapy. Maybe I should just start routine massages just to make sure. :)

My hair is slowly coming back though many people have replied how fast it's coming in. So glad to have eyelashes and eyebrows again. 


Just heard news this last week that my neighbor, Steve Danz, has been diagnosed with pancreatic cancer. There is no cure for this. They've asked that everyone pray that their insurance will accept the clinical chemo that will prolong his life. Please add him to your prayer list if you haven't already. It's hard to see someone I know going through similar experiences that I've just gone through but Steve is very positive and that will help him immensely through his fight. 


Love you all and thank you for your continued prayers and support to me and my family!!

Wednesday, August 5, 2015

Post OP Update

Met with surgeon today to check progress of surgery, possibly pull drains and get pathology report from surgery. Pathology report showed that after chemo my tumors had been significantly reduced in my lymph nodes and breasts. The left side has been diagnosed as Stage 1 with 1 lymph node out of 13 removed showing signs of having had cancer. (I can't remember how that's worded because at the moment I can't find my paperwork, but that's the jist of what he said.) The right side has been diagnosed as Stage 2B with 1 lymph node out of 11 removed showing signs of having had cancer. So good news!

Drains were not able to be pulled today because there's still too much fluid being drained. It looks like I have a small hematoma on the left side that's taking longer to drain. I will go back to the doctor Friday morning to see if by chance the right side can get pulled. The doctor will be out of town next week, so I won't be able to pull the other side until after he gets back. So another possible week-and-a-half with drains. Sad :( but I had a good attitude about it. He thought everything looks really good though.

He said I could try to do some stretching exercises. Not anything to extensive but it will help with physical therapy in a couple weeks. He explained that as things heal, the skin will get pretty tight and my back will start to bow forward and look rounded; hence the need for physical therapy.

I am going to try and do more things this week. I still can't lift more then 5 pounds but I'm sure I can find some things to do to be helpful. I take long walks each night that feel so good. I love the smell of the orchard and freshly cut hay fields. My hair is starting to grow again and so are my eyelashes. Yay! Extrememly grateful for the many prayers in my behalf and how good I'm feeling thus far.



Thursday, July 30, 2015

Rebecca returns Home

  Rebecca is now home and is adjusting very well since the surgery on Monday.  She spends most of her day resting to allow her body to heal itself.  She suprisingly has been able to take Ibuprophen alone to control her pain.  Her spirits are really good and her smile is back.

Shad